After being diagnosed with heart failure

October 22, 2018

Ms. After being diagnosed with heart failure, I began making lifestyle changes and taking multiple medicines. Perhaps because I had no obvious risk factors, no medical professional discussed stroke with me until I experienced one. Serious rehab was put on hold until I received a heart transplant. Given the time that had passed, I was told my recovery would be limited. I was told I would never walk independently. I didn't accept that diagnosis.
I enrolled in a stroke study that used manipulation and repetition and regained some movement in my left ankle and knee. I joined a gym and started experimenting with limited movement . It was slow but I made progress. The more I tried to do if I was diligent and patient, the more I was able to do. I have returned to rehab multiple times to fine tune my progress. You can hear me coming before you see me but I am walking on my 2 feet unassisted. I could never stroll down a fashion runway but I no longer resemble Igor.
Patients have to be their own advocates and ask even fight for care whether it is preventative or subsequent to suffering a stroke. This is not how it should be. Changes need to be made in educating doctors, support staff, and the general public about the risks and results of strokes.

World Stroke Organization

logo-world-strokeDedicated to improve care for stroke survivors worldwide. 

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The Post Stroke Checklist
Improving Life After Stroke

Developed to focus on the need for improved long-term stroke management.

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